Showing posts with label autism awareness. Show all posts
Showing posts with label autism awareness. Show all posts

Friday, January 8, 2016

Building An Autism Community



This is a clay molding that my son made for his dad. If you look closely you can see that it is a house standing on the side of a mountain. Isn't it lovely? 

I have been trying with some luck to organize a chapter of the Autism Society of NC for the county that I live in. Well, sort of. I have spoken with the Autism Society of NC but I am thinking of forming my own non-profit. I am not sure if I want to be associated with them directly. There is a lot of research to be done and I am following a lot of promising leads for starting an organization in my county. My cousin Randolph suggested reviewing surveys about autism for my county and surrounding counties, which we did together. There is so much need here. 

I have figured out why resources are limited. There is no one to take the lead, and if someone does take the lead, they have to invest a ton of time and money to get things going in a manner that will help the community. No one seems to be reaching out, it is like everyone has either given up hope or they are waiting for someone to hand something to them so they don't have to do any work. To me, the only way this "idea" of mine will get off the ground is if we all work together for the greater good. Am I missing something? What can I do differently? How do you reach people that feel like everyone had given up on them?

 

Wednesday, December 16, 2015

Autism Resources






I was serious yesterday about beginning an autism revolution in my community. Today, I am on the internet again searching for tools, resources, information, links or anything really to help me get this project off the ground. I am on a mission today people, lets help each other. Does anyone have any ideas they would like to share with the blogging community? I'm getting ready to take this to my Facebook page and spread the word baby!!!


Here is a link for information on reading to your child that is on the autism spectrum and there is also a pdf booklet that is 24 pages you can download and print. This information was on reading rockets website.
http://www.readingrockets.org/article/reading-together-tips-parents-children-autism-spectrum-disorder 

I have contacted the Autism Society of NC and I will speaking with someone by telephone tomorrow to see what kind of resources are in my community and how I can make a difference. I also created a page on Facebook today for myself and invited all my friends. Like I said I'm ready to start a revolution!! Who's with me?

Thursday, October 8, 2015

The Magic of Friendship and an IEP



Yesterday, I had my son's IEP meeting at school and it went well. I had to throw some base in my voice because one of the people at the IEP meeting wanted to use her "stern" voice with me and I let her know quick that I was not going to tolerate it. I am so proud of myself for doing that, there have been IEP meetings in the past where all I could seem to do was blubber and cry. 

Anyway, there are some great strategies that we, his teachers and I, are going to put in place in hopes that it will help my son. The big thing this year is getting him ready to transfer to middle school. That is a huge step and I am kind of scared. We are going to be going to a 6th grade orientation and the teachers will be taking him out to the school and he will meet the teachers and do a walk through so he is familiar with it before attending next year. 

The best part of the whole meeting though was I found out my son has a friend. Robert doesn't have any close friends and being on the autism spectrum it is hard for him to make friends. But my boy has a friend. Her name is Destiny. How fitting! The teachers said it is so cute to watch them together because Destiny is an aggressive little girl and Robert is not aggressive and the teachers said they balance each other out really well. They say he kind of blushed one day when asked about Destiny so they don't really say anything to him because they don't want to squash their friendship or make either child feel uncomfortable. Robert's social skills are growing and getting better. I still see him struggle some but he is getting there. Oh, happy day, my boy has a friend......

Thursday, September 17, 2015

Minecraft & Autism



I am very exited to announce that Minecraft comes in lego form now. I noticed this a few days ago at Wal-Mart. I so know what my youngest is getting for Christmas now. He is getting Minecraft legos and a camcorder! 

Robert is amazing. He can build the coolest things out of legos, clay or pipe cleaners. Here is an example:



This is something he built out of legos a few days ago. Now granted, this isn't his best work, but I think it is amazing. It actually works too. 

I have been reading other blogs the past few days and Minecraft seems to be something that kids with autism like. I do realize that is a generalization so please forgive me if that statement offends. My son will sit for hours and watch youtube videos about Minecraft and will get upset if he is interrupted. He will talk very excitedly about the "mods" and what he would like to build and stuff. Sometimes I watch the videos with him. 

http://learningworksforkids.com/2015/04/7-reasons-kids-with-autism-love-minecraft-2/

Tuesday, September 15, 2015

Autism Spectrum Resources


Recently, I have found several online resources pertaining to the autism spectrum that I have found very helpful. Today, this will be my version of an informative post because yesterdays post was very successful. Thanks to everyone who shared and commented on it, I really appreciate it. 

When I first began to try and figure out autism I didn't know where to turn. The only experience I had with autism was knowing of kids that could not speak or do anything for themselves. So that is not really experience, it is a preconceived notion that I had in my mind about what autism was. I readily admit that sometimes I still struggle to understand autism and how it will affect my sons future. I admit that I think about his future a lot. 

Some of the first pages that I came across belonged to Kerri Stocks and Dave Angel. Here is a link for an interview of Kerri Stocks by Dave Angel. This resource is great to me, I get emails from Dave Angel everyday and I actually added Kerri Stocks on my Facebook.
http://parentingaspergerscommunity.com/kerristocksinterview.doc.pdf 

I also receive monthly updates from Connie Hammer. You can sign up for email updates if you like.
http://parentcoachingforautism.com/about/


Another great resource is understood.org. I am fairly new to this website so I am still learning to navigate it. You can sign up for a weekly news letter as well. 
https://www.understood.org/en

This next one is an actual blog on word press. This one is new to me also, so I am still navigating and reading on this. Very informative so far.
https://learningneverstops.wordpress.com/what-is-autism/

Here is an oldie but a goody...This website has loads of information about autism.
https://www.autismspeaks.org/what-autism 

Please everyone, let us take the time to research each website so we can all have a better understanding of what autism is. If anyone has seen any other resources please give me a shout so I may add them to the list. Thanks in advance.



Monday, June 8, 2015

What Autism Means To Me

In June 2004 I gave birth to a handsome baby boy. The doctor said "This is the prettiest baby I have ever seen"! He looked amazing, he had good color and didn't have a lot of that white stuff on him. 

My son was a really calm baby. He didn't cry a lot and was just a very good baby. He would sleep and loud noise didn't seem to startle him. I noticed changes in his sleeping patterns before he reached age one. I also noticed he wasn't reaching milestones as quick as my oldest son did. I thought about how each child is different and how some just reach those milestones faster than others. 

By the time he was almost two years old, he couldn't talk. He would grab my hand and go point to what he wanted. So I took him to the doctor thinking he might be deaf. His regular pediatrician sent him to a hearing specialist, all checked out, then they sent him to another specialist. This one was the kicker. This is the day that I heard the word autism. When I heard that word, I cried...and I was a bit hysterical. I knew what "autism" was, everyone I had ever heard of with it couldn't speak and lived with their parents the rest of their lives. That was all I knew about autism. 

The first few years of his life were very rough. He was immediately enrolled in speech therapy and I saw a lot of progress within just a few weeks of him taking it. He had to go twice a week for months. I had also noticed that he never looked us in the eyes. He just had a hard time with eye contact and he would line his toys up in perfect succession. There were also some times when he would have what other people refer to as a tantrum but it was really a meltdown from to much stimulation. It was hard for him to communicate what was wrong and he couldn't tell me that it was too bright, noisy, colorful, etc. 

As he has grown his social skills are getting better. He gives me a hugs now, he talks to us more and he interacts with the kids at school which warms my heart. There are so many obstacles he will have to face and I wish I could do it for him but I can't. I talk to him sometimes like he is a little man. I say there are four things you need to know how to do in this life and that's read, write, do math and make change. Because if somebody can screw you over on your money they will. 

In school, some years he gets really awesome teachers. His third grade teacher loved him and she was so good to him. She genuinely wanted my son to succeed and when he sees her, his face lights up and he will give her a little wave. She asks him how much do you love me and he will say 20% and then she will laugh and say I thought it was more. Then he will say okay 50% but not as much as my daddy. Teachers like her make me feel like he is going to be okay because they took an interest in him as well as all her other students and didn't just put my child in the back of the class to get him out of the way. (That has happened to him) He is pulled out of class for an hour each day to work with the special education teacher one on one for reading and writing and that helps him a whole lot. 

My greatest hope for my son is that he succeed and be able to live on his own, get married and have a job. I know he can have this because I am his mother! And I believe in him!




 http://www.supportstore.com/autism-awareness-magnets-puzzle.html 

(I got this puzzle piece picture off the website listed above.)




Thursday, April 30, 2015

Autism Awareness

I was a bit harsh in my post yesterday. I've since spoken to my dad and all is right in the world again. He has a way of making me feel better and setting me straight. #survivor.

I posted a video yesterday that featured D.L. Hughley speaking about his son that has Aspergers Syndrome which is a form of autism. Now, granted I am not expert on autism but my youngest son is on the spectrum. Most autism sites give you a list of signs that may indicate your child has autism. Before my son was diagnosed, there were a lot of things that I was noticing about his development and the milestones that he was not reaching. So in the spirit of Autism Awareness month here is that list: (Sources are cited at the end of the article)


Signs and symptoms of autism in babies and toddlers

If autism is caught in infancy, treatment can take full advantage of the young brain’s remarkable plasticity. Although autism is hard to diagnose before 24 months, symptoms often surface between 12 and 18 months.  If signs are detected by 18 months of age, intensive treatment may help to rewire the brain and reverse the symptoms.
The earliest signs of autism involve the absence of normal behaviors—not the presence of abnormal ones—so they can be tough to spot. In some cases, the earliest symptoms of autism are even misinterpreted as signs of a “good baby,” since the infant may seem quiet, independent, and undemanding. However, you can catch warning signs early if you know what to look for.
Some autistic infants don't respond to cuddling, reach out to be picked up, or look at their mothers when being fed.

Early signs of autism in babies and toddlers

  • Doesn’t make eye contact (e.g. look at you when being fed).
  • Doesn't smile when smiled at.
  • Doesn't respond to his or her name or to the sound of a familiar voice.
  • Doesn’t follow objects visually.
  • Doesn't point or wave goodbye or use other gestures to communicate.
  • Doesn’t follow the gesture when you point things out.
  • Doesn’t make noises to get your attention.
  • Doesn’t initiate or respond to cuddling.
  • Doesn’t imitate your movements and facial expressions.
  • Doesn’t reach out to be picked up.
  • Doesn’t play with other people or share interest and enjoyment.
  • Doesn’t ask for help or make other basic requests.

The following delays warrant an immediate evaluation by your child’s pediatrician.

  • By 6 months: No big smiles or other warm, joyful expressions.
  • By 9 months: No back-and-forth sharing of sounds, smiles, or other facial expressions.
  • By 12 months: Lack of response to name.
  • By 12 months: No babbling or “baby talk.”
  • By 12 months: No back-and-forth gestures, such as pointing, showing, reaching, or waving.
  • By 16 months: No spoken words.
  • By 24 months: No meaningful two-word phrases that don’t involve imitating or repeating.

Signs and symptoms of autism in older children

As children get older, the red flags for autism become more diverse. There are many warning signs and symptoms, but they typically revolve around impaired social skills, speech and language difficulties, non-verbal communication difficulties, and inflexible behavior.

Signs and symptoms of social difficulties in autism

Basic social interaction can be difficult for children with autism spectrum disorders. Many kids on the autism spectrum seem to prefer to live in their own world, aloof and detached from others.
  • Appears disinterested or unaware of other people or what’s going on around them.
  • Doesn’t know how to connect with others, play, or make friends.
  • Prefers not to be touched, held, or cuddled.
  • Doesn’t play "pretend" games, engage in group games, imitate others, or use toys in creative ways.
  • Has trouble understanding or talking about feelings.
  • Doesn’t seem to hear when others talk to him or her.
  • Doesn't share interests or achievements with others (drawings, toys).

Signs and symptoms of speech and language difficulties in autism

Children with autism spectrum disorders have difficulty with speech and language. Often, they start talking late.
  • Speaks in an abnormal tone of voice, or with an odd rhythm or pitch (e.g. ends every sentence as if asking a question).
  • Repeats the same words or phrases over and over.
  • Responds to a question by repeating it, rather than answering it.
  • Refers to themselves in the third person.
  • Uses language incorrectly (grammatical errors, wrong words).
  • Has difficulty communicating needs or desires.
  • Doesn’t understand simple directions, statements, or questions.
  • Takes what is said too literally (misses undertones of humor, irony, and sarcasm).

Signs and symptoms of nonverbal communication difficulties in autism

Children with autism spectrum disorders have trouble picking up on subtle nonverbal cues and using body language. This makes the "give-and-take" of social interaction very difficult.
  • Avoids eye contact.
  • Uses facial expressions that don't match what he or she is saying.
  • Doesn’t pick up on other people’s facial expressions, tone of voice, and gestures.
  • Makes very few gestures (such as pointing). May come across as cold or “robot-like.”
  • Reacts unusually to sights, smells, textures, and sounds. May be especially sensitive to loud noises.
  • Abnormal posture, clumsiness, or eccentric ways of moving (e.g. walking exclusively on tiptoe).

Signs and symptoms of inflexibility in autism

Children with autism spectrum disorders are often restricted, inflexible, and even obsessive in their behaviors, activities, and interests.
  • Follows a rigid routine (e.g. insists on taking a specific route to school).
  • Has difficulty adapting to any changes in schedule or environment (e.g. throws a tantrum if the furniture is rearranged or bedtime is at a different time than usual).
  • Unusual attachments to toys or strange objects such as keys, light switches, or rubber bands.
  • Obsessively lines things up or arranges them in a certain order.
  • Preoccupation with a narrow topic of interest, often involving numbers or symbols (e.g. memorizing and reciting facts about maps, train schedules, or sports statistics).
  • Spends long periods of time arranging toys in specific ways, watching moving objects such as a ceiling fan, or focusing on one specific part of an object such as the wheels of a toy car.
  • Repeats the same actions or movements over and over again, such as flapping hands, rocking, or twirling (known as self-stimulatory behavior, or “stimming”). Some researchers and clinicians believe that these behaviors may soothe children with autism more than stimulate them.

Common self-stimulatory behaviors:

  • Hand flapping
  • Rocking back and forth
  • Spinning in a circle
  • Finger flicking
  • Head banging
  • Staring at lights
  • Moving fingers in front of the eyes
  • Snapping fingers
  • Tapping ears
  • Scratching
  • Lining up toys
  • Spinning objects
  • Wheel spinning
  • Watching moving objects
  • Flicking light switches on and off
  • Repeating words or noises

Causes of autism

Until recently, most scientists believed that autism is caused mostly by genetic factors. But groundbreaking new research indicates that environmental factors may be just as important in the development of autism—if not more so—than genes.
It appears that certain babies are born with a genetic vulnerability to autism that is then triggered by something in the external environment, either while he or she is still in the womb or sometime after birth.
It’s important to note that the environment, in this context, means anything outside the body. It’s not limited to things like pollution or toxins in the atmosphere. In fact, one of the most important environments appears to be the prenatal environment.

Source: Harvard Health Publications
http://www.helpguide.org/articles/autism/autism-symptoms-and-early-signs.htm
Authors: Melinda Smith, M.A., Jeanne Segal, Ph.D., and Ted Hutman, Ph.D (UCLA Center for Autism Research & Treatment). Last updated: April 2015.

******The only thing I disagree with in these types of articles is what the causes of autism are. Some people are on the vaccines that are given to our children, they say this is the cause. Or some people think it is the exposure to toxins in our environment. I personally believe it is purely genetic. ******